Saturday, December 29, 2012

Well overdue catchup!

Well it has definitely been a minute since I've said anything here. My apologies...again. Let me do a really brief catch up.

Stomach issues

you may wish to reread my last entry to even remember what I'm talking about. The stomach pains I'd been experiencing were horrific! There was NOwhere I could go or be and stay relaxed... not even my own home. The bathroom route had to be clear and near. This pain is similar to menstrual cramps but they're not in my pelvic area... I would have to say they're more behind it... even above it. ugh! my entire stomach is and has been in turmoil for far too long. My regime of Tums, Metamucile, and some antacid prescribed by my oncologist are NOT working! Not even the slightest bit.

A.D. has been on my case about this. He see's how much discomfort I'm in and want me to be better. He's positive it's from the combination of Tomoxifen and Lupron.

Lupron injection time

So I get this Lupron injection in my right upper butt-cheek every 3 months. No biggie but it burns like a MUGG!!! Of course I explain to Dr. S again about my stomach and A.D.'s concerns of it it being related to my meds. Reassuringly, he tells me it most likely not and should continue with my course of treatment.
Anniversary weekend

Instead of bahooing and having a melt down like a 2 year old(remember... from having my hair cut) A.D. and I went to Callaway Gardens for the weekend. It was a great change of pace. No doctors, no
appointments, no real medical intrusion. NICE! except my stomach is still acting like a bitch. We tried to go out several times to enjoy the weekend but due to my sensitivity to the sun and my stomach we mostly stayed in the room.

We ventured out to dinner one evening and during our meal A.D. asks me how I plan to handle this condition. He knows Dr. S wants to send me to a gastroenterologist but is certain my problems stem from Lupron and Tomofen. "If they can find a way to manage these symptoms, great... cause I can't do this for the 3-5... I'm gotta take these meds." This statement was the beginning to a whole new argument. Just about all weekend we bickered about my meds and me possibly allowing this new doctor to try and manage my symptoms. It got to a point that he told me he would not nor wanted to be present, physically or via the cell, at my next oncology appointment. WHAT!!!! I didn't know if I was to cry or scream. He's been my guide and pilot this entire journey... now he's want me to glide on my own. wow! All this cause he disagreed with my oncologist, nor believed that I needed this gastro appt, and his certainty he knew it was my life prolonging meds. I was silent the rest of the day, and the day after, and the day after that. That's my self defense mechanism...silence! T All week I .... actually .... was a bit scared. What if they give me more unfortunate news...I will be alone!

Thursday, July 21, 2011

Stomach Issues! :(

Sorry, I don't think I ever informed you on whether or not I started Lupron. This goes back to the March post. A.D. was not very happy about me taking this other drug in addition to Tamoxifen. Well, I decided to go ahead with it. A couple weeks after starting this drug however, I noticed a change in stomach and bathroom habits. :( I experienced stomach cramps like a MUG! Not like "Penelope" cramps but an achy sour stomach type of thing. Let me give you a really good analogy of this feeling... try to imagine a slightly inflated balloon partially filled with curdled milk.... now place both hands on either side of it and compress... Now squeeeeze it real hard, and repeat... now if that were your stomach I think you would agree that hurts. So anyway, I take on an OTC regime of TUMBS for cramps and Immodium for the runs. This carries on for mmooonnthss! Everywhere I went I had TUMBS on me, it kinda eased the cramping; Immodium didn't do a damn thing. So for 3 months the porcelain and I were good friends. ugh! A.D. is convinced it's the Lupron and that this is a serious side effect from it. We've knocked heads A LOT over this the past few months. He's even loosing faith and trust in my oncologist he says. "You don't need this drug," he says...."up your intake of the [Kangen] water, cancer can't survive in an alkaline body......" All in all, I figured he wants me to put more faith in a holistic approach rather than the scientific. With the way I feel about my care and how he thinks it should be handled seriously clash with each other. I'm starting to feel boxed in. I HATE(somber voice) that feeling... it makes me shut down and retaliate. ugh... Please God, help us through this.


June appointment

Today I'm scheduled to see my oncologist. All is well but I explain to him the stomach issues I've been having. He prescribes a regime of pills for acid reflux and tells me to increase my fiber with Metamucil. "That should take care of it but if not we'll look into other possible causes for this problem." Fine. We chit chat a little more then he says to follow him over to Tika, my nurse, to get my next Lupron. Puzzled, I asked "you want me to leave the room."
"Yes, come" he says.

OK. See, Lupron is a shot in the upper butt cheek so that means I gotta kinda take some part of my garment off. Maybe he knows of some other way Tika does this, so I follow along.

Needless to say, when we got over to the "Mixing Room" where she was working she looked puzzled. I was right, shouldn't have left the room.

"Between you and Dr. S. I don't know what I'm gonna do wich y'all... you gone moon ererybody in here?" lol!!!

Anyway, she fixes or mixes up my medication and comes out the "Mixing Room" shaking the the syringe making sure it's combined well. "Well I guess we can use the employee restroom." My thought on this... it just doesn't look quiet right 2 chicks heading into a single restroom. Guess she thought the same thing cause she cracked up when I share my thought. In there we also discussed the symptoms I was experiencing. Her response coincided with Dr.S... this doesn't seem typical of these meds. Guess I'll do this regime and see what happens.

Chocolate Chip II

It's been several weeks since I've giving you guys an update. Let me fill you in on what's happening.

Chocolate Chip


Well, still waiting for this bond to break... it's as if the ol chip (necrotic/dead skin/scab) doesn't want to leave me. Still hanging on by a little of the underlying tissue. I nurse it everyday and keep it clean so I guess it's feeling pretty cumphy, maybe trying to inform the new stuff how to treat me right. :D By the way, the new areola is looking pretty decent...at least what it allows me to see. The pigmentation is coming back nicely but is still pink in some areas. There is little to no sensation in either areola yet all is well with the breast itself. Time will tell the rest of this tale.

Oh, how bout this... During my visit to the cosmetic surgeon several weeks ago, I learned that she is leaving... like another state leaving. She say's to me "So, you know that after next week the office will be closed right?" Closed for what...."you going on vacation?" To both our surprise, I didn't know her practice was closing for good! "How could my girl patient not know" she says. Well somehow, your staff FORGOT TO MENTION, E MAIL, LETTER, OR CALL ME AND TELL ME!!! That was some kinda 2 week notice. Oh well. She did however remember to refer all her patients to another provider, I just refuse to travel all the way to Marietta to see this person. Gas is too high and I drive a SUV. I'll find a provider closer to me.

Monday, June 13, 2011

Death of a Chocolate Chip

Hello all. Hope everyone is doing well... yes, I am as well but I will quickly fill you in on what's the latest. It's not toooo major yet something to deal with over time.

Today is Monday June13, 2011. Since last week Wednesday I vaguely suspected an infection in my left breast, by Friday I was pretty certain. Ugh! this thing started smelling like an old wound. It started very subtle but was an uncomfortable stench on Friday. Luckily we have this Kangen water system; yup I truly believe in this thing; that allowed us to make a low 2.5 ph water. At this ph level, bacteria can not live. So I've been wrapping my boob up with a towel soaked in this stuff. Guess what??!! it helped reduce to open area around the areola as well as the stench.

Though there was significant improvement in the breast since Friday, I still made it a point to go see my surgeon Monday morning. I won't be long with this story. During the exam I explained the situation and she concluded that I have a case of Necrosis, premature death of cells, limited to the areola. Now, it's a waiting game. Wait for the dead tissue to fall off, wait to see if the color comes back, and wait to see if I get sensation back in the nipple. If the color doesn't return, she said it may take up to a year, she'll send me to have a medical tat done. Interesting! There is nothing they can do about the loss of sensation, we just hope that the nerves will reconnect and do what they are supposed to do. We'll see.

(sad violin music)

Now my "chocolate chip" is dead, may it now rest in peace. Oh, how I will miss it's presence and it love for.... love. ;) I look to the future now when it's progeny appear will be revealed. I promise to love and care for it, no matter how different you two are. Thank you for sticking with me for 35 years.


Peace.

Friday, June 10, 2011

Post Op & It's a Wrap

Well it's been 1 month since my last surgery. My hand is great, just a little numb in the thumb. :) By the way, I don't think I really explained what that was about. There were 2 benign cysts in my right hand; 1 on top of my wrist and the other in my thumb joint; that were removed. Noo biggie.

The team is looking really good too. Though the areola on the left, radiation treated side, resembles a burnt chip. Right now it's my "chocolate chip diskette... that's just what it looks like to me. Dr. F. feels that it will heal over time and that I may get more feeling back in it. They both still have some healing to do but I'll loving their more youthful appearance. Both A.D. and I were pleased the first time I removed the granny support bra and put on a tank. Victoria and it's other secrets are still on hold. While I have graduated from the granny support medical bra, I still can not wear a regular one... just a sport for now.

Still very limited on activity. The body has to heal completely before I can get back into some kinda groove. At this point my body is saying WHATEVAaa! Things have gotten flabby, dimply, and a tad bit jiggly. ugh! It'll be like starting from scratch when I finally get to pick up a wight, do some P90x, Jillian Michaels, or even (dreaded)jog. I especially miss martial art training with my adult students. The crew we have is like an extended family. They have been crazy supportive and I thank them for that. LUV YOU GUYS!!!!! :)

It's a Wrap

Wow! the time has come for me to say goodbye to all I.V. treatments. Yes, Friday June 3, 2011, I received my LAST Herceptin. What a milestone. All that's left are a daily pill [Tamoxifen]that I'll be on for the next 5 years, a [Lupron]shot in the hip every 3 months for the next 3 yrs, blood workups and some scans for the next 5. NOT bad. Oh, and 1 other very small surgery to remove my port... whenever that may be. Dr. S. has already requested I keep it until after my PET scan, but the ladies in the cancer center informed me they may ask I keep it for up to a year. hhhmmm.... interesting. I'll keep you posted.

The blog posts will slow down now, as they already have, since there isn't anything much going on at this point. Thank you all for your support, encouragement, cards, calls, texts, e mails, and visits along this journey. Each of you hold a special place in my heart that I will cherish for a long time.

Wednesday, May 11, 2011

Recontruction time

All has been pretty normal for a while. I decided to go ahead with the Lupron, think I mentioned it before, and still on everything else.

I went in for my Herceptin infusion. Of course Dr. S, my oncologist, wanted to see me first so the nurse took me to a patient room. He came in just as jolly as can be. LOL! "Hey there, how are you,tell me what going on." I explained that I had been having trouble sleeping, and staying asleep. That's so NOT like me, usually when my head touch my pillow I'm out. So he gives me Ambien. The he says to me I know you're probably going to punch me but how are hot flashes going?" I looked at him and sat up straight. "You knew this would happen huh?" "yes" he said. No I didn't punch him, not my style, ;-)but I did give him an earful of my new experiences with hot flashes. They can make a sista (or any person) miserable. He explains why they are a good thing in my case. If I weren't experiencing them, that would mean my body is still ovulating and creating hormones. So for now they are a good thing.

Monday May 9,2011 Surgery Day

I've been looking forward to this surgery for a while. Reconstructive surgery. No I didn't have a mastectomy BUT the left side of the team was a bit disfigured and smaller due to the lumpectomy and radiation. The surgeon; Dr.F; said she would fix that, make the breast symmetrical, and give me a lift as well using nothing but my own tissue.

Got to the hospital on time and they got busy with me going over notes,taking vitals, and starting an IV IN MY FOOT! OUCH!!!I'm sure I crushed A.D.'s hand for that one. The blood pressure cup was then placed on my other leg. See, I can no longer have anything restrictive on my left side due to the removal of lymph nodes and hand surgeon, Dr.Y., was brought in to remove two benign cysts from the right hand.

Dr. F came in shortly before the begin time and drew some makings on my chest. I'm excited now. Then the driver comes to take me back to O.R. LOL! It's the same dude that took my back last time. OR 2 is where we're stationed today. Dr. Y. comes out greets me and draws a smiley face on my finger and hand where he will be working.

In O.R. I'm transferred to another bed. LOL! this is nice. There is some blues playing. Dr. Y. explained that he had just gotten back from a Louisiana festival and had picked it up. Of course I take notice of everything around me. The tech's, the nurse, the equipment; ugh shouldn't have looked at that; the lights, everything. Anesthesia comes in and plays a game on me. Literally! After placing some wires and I guess getting some stuff in order she says "Let's make sure this the the right size mask for you." :l That's the last I remember before waking up in recovery.

Recovery Triage

All I really remember is starting to wake up in pain. The nurse next to me asked how I was doing and I told her "my boobies hurt." "Ok, I'll get you another dose of morphine. Think I got about 3 or 4 of those before they wheeled me to the patient room. Took about another 2 hour nap then went home.

Now I rest at home with a tight support bra and my hand bandaged. :l Friday we go in for a followup. I'll get a glimpse of them and learn how to change my bandages.

Sunday, May 8, 2011

April 21, 2010

Very Apprehensive this morning. Today I get the results from the biopsies. There is something just churning in my gut... but I don't know what. Maybe because I know I'm not a good test taker and may not get good results. Nerves!!! Nerves!!! NERVOUS, on the inside, but on the outside all you see is a calm, in control Mel.

A.D. and I got the kids off to school... on time, then head to Dunkin Donuts before heading to Dekalb Medical. UGH! my stomach.... churning with nerves! Anxiety is killing me...yet I maintain steady on the outside. Just don't fuck with me right now... ANYBODY!

AT THE HOSPITAL

A.D. pulls into a disables parking spot, I still had my decal from when I was in crutches and didn't mind still using it though I was better. UGH! my stomach is letting me know I ain't comfortable with my environment. ANXIETY!!! A.D. knows me well... I believe he can actually feel my distress and comforts me with simple works I can comprehend right now; "it's okay babe."

Sitting there in the waiting room allowed me to think about a lot of things. But I recalled wanting to see Dr. R.'s face, I needed to read her expressions and body language. I could determine if she had good news or not. A few more minutes go by then the nurse calls "Merrick."

Heading to the patient room

Nicole smiles as we came to her but it isn't her expression or face demeanor I'm interested in... Dr. R.? where are you? Just about to the room and I look to my left and there she is but damn!!!! her back is to me as she consults with one of the med students. ugh!!! WAIT!!! He looked at me, he couldn't help but lock eyes with me for a few seconds. Yea, sincerity was there but there was something more genuine,.... kindness... sympathy??? SHIT!!!! What does he know that I don't!? Still it's not his expression I want, but she kept her back to me.

We waited a few seconds, and I do mean seconds, and she comes in; without the student. DAMN, her face is neutral... she tells me nothing much by her demeanor, but she isn't really smiling as she usually does. After a little exam of my breast, from the biopsy area, she sits on her rolling stool and says "Well you did well with your test but unfortunately the samples came back as Cancer... you have breast cancer." The rest was a blur... she attempted to tell us some other stuff but she sounded like the Charlie Brown characters.

I'm going to spare you the rest of the story and let you read it in my book; the one that so many are encouraging me to write. :) It's a bit much for me to types these words, they are quoted word from my medical diary and those were written fresh with emotions at the time. Trust that this has been a tremendous emotional journey for my family and I, and that showing and sharing my emotion like this is NOT like me.

Anyway, I believe you can now pick up the rest of the story at the beginning of this blog site.